We’re getting there…


This week I’ve started the article about sm and further eduction but it’s more difficult than I thought it would be! What course can you do when you might not be able to speak? And what help is out there? I’ve emailed a few companies who offer courses to ask what the options are for people who may struggle with talking and I’m waiting to hear back so will pick up the article again next week once I’ve had some replies. On the plus side, I did get a friendly reply from a man from Anxiety UK who said he had spent 20 minutes looking for more info on sm in adults and agreed there’s not much out there! I replied with a few questions asking about further education so hopefully they will come back with some good advice for us.

I know it’s difficult but it can be done. I did a NVQ in business and administration about seven years ago now and although I did struggle communicating with others my age on the same course I surprised myself at how relaxed I felt in the actual work placement where I spent most of my time. The people in the department I was in were so friendly and understanding and I got a bit upset on my last day when I’d finished the course and had to leave. They had decorated my desk with balloons and confetti, it was so nice to feel a part of the team and definately helped my confidence in looking for a full time job.

Studying

Has anyone else had any experience with NVQs, online courses or volunteering that would mind sharing how they got on or any teachers who have advice on where to go for help? Or are there any other further education options for our overseas members I can add in?


This week I’m starting an article on research about parent-led CBT (cognitive behavioural therapy). It’s interesting how that by changing our thinking we can change the way we react to certain situations and as a parent/carer is normally with the child for the majority of the time it makes sense that they be able to help the most. Recent research has shown that parent-led CBT done in the home environment can work just as well as CBT done in the therapist’s room.


Please keep sending in any articles, comments or photos for the magazine. We’ve got a great collage of all our ‘what makes us smile’ photos that I’m quite excited about! I’ve updated the I Want To Help page with a form so you can send in any comments or short articles straight from there if that’s easier. Also coming soon will be a funny photo caption competition – I’ll let you know more next week.

Thanks everyone and have a good Sunday!

 


Comments

Lizzie says:

Hey, so I did a childcare level 2 and level 3 diploma in childcare and young people. I was in a baby unit (the babies didnt care I couldn’t talk) for over 2 1/2 years. I was with the babies 4 days a week and instead of going into college I just did the course at home alone with my assessor helping.
I suffered a lot of bullying from staff and manager and was discriminated against but I fought for the course and with a LOT of hard work I found and used ways I could communicate with babies to 4 yr olds. I was promised a job but with 2 days warning I was told I had to leave.
My experience isnt very nice to talk about 🙁

rosie says:

Did you get the option to finish the course at a different placement or had you already finished it? That’s horrible about the staff. People can be so mean, sometimes without even realising it. At least you kept at it and found ways to communicate with the babies and children, that’s determination 🙂

Lizzie says:

I finished the course and qualified and they got rid of me 🙁 I loved being with the babies and was based in the baby room but for a few months I had to go into the toddler room and I didnt cope at all but I had to do it. Then I developed some other disorders due to extreme stress (from being with children that could talk unlike the babies who didnt care about SM) and I was on “suspension” for 10 months and only went into the nursery now and again till I had got control of the disorder, once I returned back to work fully I was reunited with the babies full time 😉

rosie says:

At least you finished the course and qualified – if you wanted you could always use it and get a placement somewhere else where they appreciate you more when you’re ready. It’s a shame that some places can only afford to hire trainees – when you finish the course they can’t afford to pay the full wage and keep you on 🙁 I did a business and administration nvq but didn’t stay on afterwards either because my placement was in an accounting department so I had no qualifications for that. It’s all good experience though! 🙂

Lizzie says:

Apparently I’m too ill to get a job or any placement – with having SM, CRPS (being in a wheelchair), severe depression, chronic fatigue syndrome – the list could go on haha! I have to get a bit better….they are saying im too ill to even do an hours volunteering a week so Im working with a charity to help me start to cope with it all more 🙂 hopefully when Im doing better in a few years I can get some place. At the moment I just care for friends babies as they know I know what Im doing etc.

rosie says:

Just keep taking it slow, you’ll get there! 🙂

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